fbpx

MSIF websites terms & data protection

Last updated: 10th March 2018

Terms & Privacy

The MS International Federation is committed to protecting the privacy of the users of its websites. These general terms relate to all of the websites owned or operated by the MS International Federation. These include: www.msif.org, www.worldmsday.orgwww.progressivemsalliance.org, https://actonms.msif.org/ and www.kissgoodbyetomsglobal.org. Your continued use of any of these sites is confirmation of your consent to these terms.

Privacy

The MS International Federation is committed to protecting the privacy of the users of its website. The MS International Federation collects no personal information about these users except where they specifically and knowingly provide it.

The MS International Federation is committed to respecting and protecting your privacy. We have structured our websites so that, in general, you can visit them without identifying yourself or revealing any personal information or health status. If you choose to provide us personally identifiable information (any information by which you can be identified) or health status, you can be assured that it will only be used to support your contact/relationship with The MS International Federation.

If you subscribe to any of our e-newsletters, fundraising or other communications resources, the MS International Federation will retain your details so that we can email you as requested. You may unsubscribe or manage your subscriptions at any time by following the link at the bottom of all emails or contacting the MS International Federation.

The MS International Federation will not share your email address with any other individuals or organisations without your permission, unless stated explicitly below.

If you submit a query or contact us via the website, the MS International Federation will use the information you supply only to respond to your enquiry.

You may amend or request access to the personal data the MS International Federation holds on you by:

  • Contacting us
  • Calling +44 (0)20 7620 1911
  • Writing to Multiple Sclerosis International Federation, Skyline House, 200 Union Street, London SE1 0LX

Cookies

When you access and use this website the pages you access, together with a cookie, will be downloaded to your computer. If you use this site, we will infer that you consent to us using cookies as described here.

Cookies are software applications which store information about your visit to our website on your hard drive. This information supplied by cookies can help the MS International Federation provide you with a better experience when using this website by analysing the way in which people use the site. Cookies do not identify you personally but they do identify your computer.

Our websites may collect some or all of the following cookies:

You can disable cookies using your browser software (for information on how to do this check your browser information/help facilities). You will still be able to browse the website if you do this with no loss of functionality.

We may use the information collected by cookies to monitor the performance of the website.

To find out more about UK law on cookies and other aspects of online privacy, visit the website of the UK Information Commissioner’s Office.

Copyright

The MS International Federation holds the copyright to the content of its websites except where otherwise indicated. Images on these sites are published by kind permission of individuals, our member organisations, or the European Multiple Sclerosis Platform. Some of these permissions prior to May 2018 are verbal. From May 2018 written consent will have been attained for all newly acquired photos. They may not be reused without the explicit consent of the individuals or organisations that own the copyright. To seek permission to reproduce or translate the content of this site, or to request removal of a photo please contact us.

For the avoidance of doubt, you have our permission to download material where indicated on our websites. For permission to reproduce material please contact The MS International Federation head office.

Content posted by you – Any content that you post to our websites and/or social media channels (e.g. photos and videos) is your responsibility, and you must make sure that you have the necessary rights to post that content (e.g. by obtaining permission of copyright owners if necessary).

Keeping our website and social media channels safe – We need your help to keep our websites and social media safe. Therefore, you must adhere to the following: a. You must not collect users’ content using automated means b. You must not upload viruses or other malicious code c. You must not bully, intimidate or harass anyone d. You must not post any content that infringes or violates someone else’s rights, or otherwise violates the law, or that is hateful, threatening, pornographic or violent.

By posting any content, you give the MS International Federation a non-exclusive, royalty-free worldwide right to use and reproduce that content across all of MS International Federations websites and social media.

Any private messages sent to the MS International Federation via social media (e.g. Facebook Messenger) will be deleted once the enquiry has been dealt with.

Third party websites

MS International Federation websites may include links to other relevant websites. The MS International Federation is not responsible for the content or conduct of any third party sites it links to. The MS International Federation is not responsible for such third parties and you use those websites or resources at your own risk. The MS International Federation is only responsible for its own websites: www.msif.org, www.worldmsday.orgwww.progressivemsalliance.org, https://actonms.msif.org/ and www.kissgoodbyetomsglobal.org

Links to this site

The MS International Federation encourages people and organisations dedicated to tackling MS to link to these websites. You do not need to ask our permission to do so.

Disclaimer

These websites are not intended to give advice on medical diagnosis or treatment. The information should not be relied on to suggest a course of treatment for a particular individual, and it should not be used in place of a visit, call, consultation or the advice or a physician or other qualified healthcare provider. You should contact or see your physician or other qualified healthcare provider promptly if you have any questions or before embarking on a new treatment, diet, or fitness program etc.

You should never disregard or delay seeking medical advice from your physician or other qualified healthcare provider because of something you have read, heard or seen on these websites.

Although the MS International Federation has made every effort to provide high quality information, the MS International Federation disclaims any implied guarantee about the accuracy, completeness, timeliness or relevance of any information.

We take great care with our websites to ensure they are free of any offensive or damaging material. However, you use these sites at your own risk and The MS International Federation will not be liable for any costs or losses you incur through your use of our websites.

Liability

Events promoted online (on an MSIF site or third party site) in aid of the MS International Federation – Please be aware that organising and running the event is your responsibility. You will be responsible for taking care of all permits, permissions or other similar issues arising from the event that you organise and The MS International Federation will not have any liability in relation to any injury, damage or loss at an event, unless The MS International Federation has issued Public Liability Insurance to you.

Donations and fundraising

Donations on MS International Federation websites (except for the Progressive MS Alliance website) are managed by the MS International Federation and its payment gateway providers. These terms relate to all donations managed by the MS International Federation. Those on the Progressive MS Alliance website have separate terms below.

Finance and personal data for donations – The MS International Federation and its payment gateway ae legally obligated to retain essential data relating to your donation for at least seven years. The MS International Federation does not retain payment card details. The MS International Federation abides by the laws of the United Kingdom of Great Britain and Northern Ireland in relation to data retention and protection for financial transactions.

Donations will be used as described on the fundraising page, in line with MS International Federation policies.

Refunds Policy for Donations – The MS International Federation is happy to refund your donation if you have made it in error. You have 48 hours to request a refund. If you wish to request a refund then please contact us using the contact details on the relevant website.

Without your consent the MS International Federation will not contact donors who contribute to fundraising pages on MS International Federation websites.

Removing or deleting offensive material/comments

The MS International Federation’s rights may remove any content posted by you, or prevent access by you to our websites if you do not comply with these Terms. Any failure by the MS International Federation to enforce its rights under these terms if you do not comply is not a waiver and we remain entitled to enforce our rights in relation to that or any other non-compliance by you.

Governing law

The MS International Federation entity and relevant law governing these terms form an agreement between you and The MS International Federation, subject to the laws of the United Kingdom of Great Britain and Northern Ireland.

 

Terms specific to the Progressive MS Alliance

Management

This website is managed by Multiple Sclerosis International Federation on behalf of the Progressive MS Alliance.

Privacy policy

MSIF is committed to protecting the privacy of the users of the Progressive MS Alliance website.

MSIF collects no personal information about these users except where they specifically and knowingly provide it.

If you subscribe to the Progressive MS Alliance e-newsletter, MSIF will retain your email address so that we can send you the newsletter.

You may unsubscribe from the e-newsletter at any time.

MSIF may in the future transfer your email address to one or more members of the Progressive MS Alliance (including members outside the European Economic Area).

MSIF will not share your email address with any other individuals or organisations.

If you submit a query or contact us via the website, MSIF will use the information you supply only to respond to your enquiry.

You may amend or request access to the personal data MSIF holds on you by:

  • Emailing [email protected]
  • Calling +44 (0)20 7620 1911
  • Writing to Multiple Sclerosis International Federation, Skyline House, 200 Union Street, London SE1 0LX

Donations through the Progressive MS Alliance website

Donations made through the Progressive MS Alliance website will be made to the National Multiple Sclerosis Society (USA). The National Multiple Sclerosis Society (USA) is responsible for all donations, data protection and security. The MS International Federation has no responsibility for any donations made through the Progressive MS Alliance website. For information on the terms relating to donations to the National Multiple Sclerosis Society (USA) please contact them via the contact section of their website.

 

Terms specific to Kiss Goodbye to MS Global

Refunds Policy for Merchandise

The refunds page is the responsibility of Kiss Goodbye to MS/MS Research Australia. Kiss Goodbye to MS Global does not have any responsibility for transactions, returns or refunds. Please check their terms and conditions regarding refunds.

 

Contact Us

We're not around right now. But you can send us an email and we'll get back to you, asap.

Not readable? Change text. captcha txt

Start typing and press Enter to search